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#1 joseph1951

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Inviato 23 marzo 2008 - 18:11:28

l'asocizioen eurolyme pubblica newsltter settimalai . Allego un breve selezioen degli argomanti trattati sulla newsleteer di oggis.
La Borrelia burgodferi e le sue varianti europee (in Italiane vete almeno 4) + la variante americana. inneca procssi ME,sifilitoco-simili, e' un batterio che ha tre ciclic vitali, fa anche il bozzolo (o la ciste) e' multisistmico, e moltopsesso coprensete in ME assimead abbateri a formal L come la Sifilide, la babesia, ecc. Disabilita il sistema immunitario neuroendocrino, ec. In efftti una ueroboreliosi in fase avanzat produice gli stessi sintomi e danni di una ME' in fase sette e sono copresenti gli stessi batteri gli stssi virus, . Ecc. L'argometo interessante sulla Lyme e che neiprotocolli di malattia lyme si usa anche l'invermectin per denare ilsitma linfatico aggravato da battri e parassiti opportunisitici quali la wurchereria, l gli acari, ecc. Si in fase grave vi beccate anche gli acari. (che vivoo nei cuscini che usate per dormire.

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EuroLyme Lyme Disease Support Group
Messages In This Digest (25 Messages)
1a. Guildford From: joanne
1b. Re: Guildford From: val
1c. Re: Guildford From: Joanne Drayson
1d. Guildford From: Joanne Drayson
2a. Re: Lyme conditions result From: annayed
2b. Re: Lyme conditions result From: newforest41
2c. Re: Lyme conditions result From: einealice
2d. Re: Lyme conditions result From: russel.huxtable
2e. Re: Lyme conditions result From: newforest41
3a. Re: bedbound,no doctor,no diagnosis From: Jo Gurney
4. Re Jumping genes From: Denise Longman
5a. Re: Lyme or TBE? From: jacqui butterworth
5b. Re: Lyme or TBE? From: Joanne Drayson
5c. Re: Lyme or TBE? From: Gill Reese
6. about ivermectin/denzel From: Akif Ozbek
7. can rife treatment make short herx after immediately session? From: Akif Ozbek
8a. Re: bones and things From: kate8552
8b. Re: bones and things From: Joanne Drayson
9. Tickborne encephalitis, southwestern France. From: Nelly Pointis
10a. Human dirofilariasis: 3 cases in the south of France From: Nelly Pointis
11. Gluten-free vegan diet induces decreased LDL and oxidized LDL levels From: Gill Reese
12. Pathogenesis of Lyme Neuroborreliosis: From Infection to Inflammatio From: Nelly Pointis
13. babesia and CoQ10 From: russellhuxtable
14a. Re: immunology and results From: chelsea c
15a. Re: Happy Easter From: chelsea c
View All Topics | Create New Topic Messages
1a. Guildford
Posted by: "joanne" j.drayson@yahoo.com j.drayson
Sat Mar 22, 2008 3:55 am (PDT)
Hello I'm trying to contact anyone in Guildford area who has or is
suffering from Lyme.I can see from past posts that Justin Ackroyd and
David Nye both come from this area but I have been unable to send E
mail direct to them. I have written to MP who is Shadow Health
Secretary and she has written to Health Secretary, I realise what the
response will be similar to recent E Petition. I have also contacted
local paper which did an article last year on a local man. I am hopeing
they will see me next week with a view to a further article to raise
awareness in Surrey area round Guildford. I am aware that my local
surgery has had several other cases in the initial stages of ER. If
there is anyone else in the Guildford area who would like to contribute
I would be delighted.

Joanne


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Messages in this topic (4)
1b. Re: Guildford
Posted by: "val" ValEllis@headleydown.fsnet.co.uk val67uk
Sat Mar 22, 2008 5:34 am (PDT)
Hi Joanne,

I am about 15 - 20 miles south of Guildford.

Val
----- Original Message -----
From: joanne
To: EuroLyme@yahoogroups.com
Sent: Saturday, March 22, 2008 10:54 AM
Subject: [EuroLyme] Guildford

Hello I'm trying to contact anyone in Guildford area who has or is
suffering from Lyme.I can see from past posts that Justin Ackroyd and
David Nye both come from this area but I have been unable to send E
mail direct to them. I have written to MP who is Shadow Health
Secretary and she has written to Health Secretary, I realise what the
response will be similar to recent E Petition. I have also contacted
local paper which did an article last year on a local man. I am hopeing
they will see me next week with a view to a further article to raise
awareness in Surrey area round Guildford. I am aware that my local
surgery has had several other cases in the initial stages of ER. If
there is anyone else in the Guildford area who would like to contribute
I would be delighted.

Joanne

[Non-text portions of this message have been removed]


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Messages in this topic (4)
1c. Re: Guildford
Posted by: "Joanne Drayson" j.drayson@yahoo.com j.drayson
Sat Mar 22, 2008 7:38 am (PDT)
Hi Val
Thanks for that. I see looking at earlier post that you have been treated for ME for 14 years before recently getting positive tests for co infections I think you say. Do you know if that includes Lyme not that it matters because my line is going to be Tick-borne illness not just Lyme. Do you mind if I loosley quote you although I know there are people in the Guildford area. No names or e mails or Doctors. E mail me of line if you like.I also got ME/CFS label before seeing LLMD but GP still thought it was Lyme. Unlike you I have no positive blood tests but have had for 5 years and been on steroids 20 months(thought it was Poly Myalgia Rheumatica) came off last July. Definitely improving thank goodness.
Best wishes Joanne

----- Original Message ----
From: val <ValEllis@headleydown.fsnet.co.uk>
To: EuroLyme@yahoogroups.com
Sent: Saturday, March 22, 2008 12:34:43 PM
Subject: Re: [EuroLyme] Guildford

Hi Joanne,

I am about 15 - 20 miles south of Guildford.

Val
----- Original Message -----
From: joanne
To: EuroLyme@yahoogroup s.com
Sent: Saturday, March 22, 2008 10:54 AM
Subject: [EuroLyme] Guildford

Hello I'm trying to contact anyone in Guildford area who has or is
suffering from Lyme.I can see from past posts that Justin Ackroyd and
David Nye both come from this area but I have been unable to send E
mail direct to them. I have written to MP who is Shadow Health
Secretary and she has written to Health Secretary, I realise what the
response will be similar to recent E Petition. I have also contacted
local paper which did an article last year on a local man. I am hopeing
they will see me next week with a view to a further article to raise
awareness in Surrey area round Guildford. I am aware that my local
surgery has had several other cases in the initial stages of ER. If
there is anyone else in the Guildford area who would like to contribute
I would be delighted.

Joanne

[Non-text portions of this message have been removed]

__________________________________________________________
Looking for last minute shopping deals?
Find them fast with Yahoo! Search. http://tools.search....tegory=shopping

[Non-text portions of this message have been removed]


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Messages in this topic (4)
1d. Guildford
Posted by: "Joanne Drayson" j.drayson@yahoo.com j.drayson
Sat Mar 22, 2008 7:49 am (PDT)
My apologise for spelling I meant to type Justine Ackroyd if any one has a contact E mail I would appreciate as the one on here came back unknown. I think she is the same Justine meantioned in publicity for Bada UK. Can any one help enlighten me. Thanks Joanne

__________________________________________________________
Never miss a thing. Make Yahoo your home page.
http://www.yahoo.com/r/hs

[Non-text portions of this message have been removed]


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Messages in this topic (4)
2a. Re: Lyme conditions result
Posted by: "annayed" haniacroft@hotmail.com annayed
Sat Mar 22, 2008 3:57 am (PDT)
Hi Peter,

Are your symptoms listed in their order of onset?

I also wondered whether (if aside from suffering similar symptoms)
others (with chronic lyme) have also found that their onset of
symptoms occurred in a similar order? And if so what?

Eg, recently I've had stinging sensations in my eyes - but carpel
tunnel/neck problems began about a year ago. My symptoms first began
to impede me severely about 4 years ago.

Kind regards

Hania

--- In EuroLyme@yahoogroups.com, "newforest41" <newforest41@...> wrote:
>
> Hi
> Below is the very subjective list of symptoms and conditions now
> including those that responded as well.
>
> There are 138 conditions listed so there must be a lesson there
> somewhere.
>
> Fatigue leading to severe desire to fall asleep, stiff neck and face,
> pain in eyes or more often one eye, pain behind eye, pain at back of
> head seemingly passing through to eye, eye squeaky on touch or even
> on shutting, photosensitivity, blindness, loss of hearing, tinnitus,
> hypersensitivity to sound, pain in nose on breathing, difficulty in
> obtaining breath due to collapse of sides of nose, sinus infection
> symptoms, joint pain, pain in wrists similar to Carpel-tunnel
> syndrome,
>
> inflammation of the nerve systems of peripheral parts, pain and
> stiffness in finger joints in spite of use or exercise, swollen
> knees, bulls-eye bite mark, skin rashes that can be red, red-blue,
> blue-black, brown-blue, brown, or black potato-like marks, small red
> bite-like marks, often near bruise marks, pain in testicles, swelling
> of testicles, pain in the perineum, frequent or painful urination,
> constant feeling of need to urinate, pain on organism, tenderness in
> vagina and pain on intercourse, pain in abdomen, muscle pain, back
> pain, pain in small of the back,
>
> pain in the breast, pain in hips and buttocks, arthritic pain,
> migraine, often one-sided, headache, giddiness, balance problems,
> heavy-brain feeling often one-sided, blue-red skin under foot, red-
> white atrophy of skin under foot, redness under foot extending to
> clearly marked line along foot about a cm above bottom of foot,
> drying and cracking of skin under foot, loss of feeling and numbness
> in extremities such as fingers, feet and ears, neurological problems,
> problems with memory and confusion, brain fog or sudden loss of
> mental memory and attention, episodes of anger without apparent
> cause, episodes of apathy and indifference,
>
> problems concentrating, problems concentrating on one thing at a
> time with several activities going on simultaneously, heart problems,
> heart block, palpitations, heart inflammation, low-level cough or
> bronchitis with continual expectorant, teeth grinding, teeth
> infection, tight-jaw problems with excess firmness in jaw, pain in
> jaw muscles and in the mandible joint, one-sided paralysis in
> shoulder and neck and facial muscles, shoulder-droop, fencing stance
> of body, eye twitching, muscle twitch,
>
> encephalitis, meningitis, one-sided tension of facial muscles leading
> to appearance of lop-sided smile, loss of feeling in facial muscles,
> often one-sided, permanent thrusting forward of face, alcohol
> intolerance leading to extreme drunkenness or desire to sleep with
> very moderate intake of alcohol, alcohol intolerance leading to
> extremely painful and long-lasting eye pain that responds to no
> treatment, alcohol intolerance leading to giddiness and memory loss,
> alcohol intolerance that leads to inexplicable loss of impulse
> control, allergies of various sorts both violent and extreme in
> degree and in their resistance to conventional treatments,
>
> flu-like symptoms, feeling unwell, tendon problems, Baker cysts,
> skeletal problems, tingling, pricking or numbness of skin, balance
> problems, sleep disturbance, changes in mood or affect, low-level
> encephalitis. The personal and familial overload of changing and
> never-ending symptoms coupled with difficulties in obtaining medical
> advice or help of use, and even of adversarial medical misconduct can
> often lead to a secondary breakdown state which may appear to be a
> psychological disorder. Removal of some of these difficulties usually
> leads to a reduction or resolution of the so-called psychological
> illness,
>
> `bee sting' or `zapping' sensations in the brain, from one ear to the
> other, on face, in spine, stomach, armpits, ovaries, testicles and
> pelvis, itching, feelings of small electric shocks in head, sensation
> of `ant chewing' over whole body, feeling water running down forehead
> on inside, dry cough, burnt tongue sensation, feeling as if uvula is
> about to choke, smell phobia, vibration phobia, abnormal slow heart
> action, low or high blood pressure, recurrent itching, feeling as if
> head or body is trembling or vibrating, spontaneous bruising mainly
> on limbs hands and feet,
>
> earache, enormous sneezes, sensation of movement of cotton wool bud
> and down ear canal, gastric reflux, limb or body jerking, postural
> low blood pressure, pain on back between shoulder blades, distorted
> vision with appearance of pyrotechnics in periphery of visual field,
> weird dreams, facial pain mimicking sinusitis, hypersensitivity to
> heat, hypersensitivity to cold, breaking out in sweats, low body
> temperature, oesophageal hernia, feeling of food lodged at back of
> mouth, feeling of something stuck in throat, air hunger,
>
> Peter T
>


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Messages in this topic (6)
2b. Re: Lyme conditions result
Posted by: "newforest41" newforest41@yahoo.co.uk newforest41
Sat Mar 22, 2008 12:37 pm (PDT)
Hi Hania
No, the symptoms are not listed in order of onset. I got Lyme with a
very serious meningitis or encephalitís with rash over all my body
when I was eight. I had a temperature of 104 degrees F. This is 40
deg C, a very high temperature and one which made all concerned very
worried. They became even more concerned when the temperature did not
decrease. I was retching all the time and could not eat. I had
diarrhea. I had an awful headache and kept praying that God would let
me die.

This was my first term at preparatory school in the New Forest. It
was the summer term and every day we would play cowboys and indians,
crawling along in the long grass in our shorts. I remember the small
spiders that ran quickly over my arms.

The local doctor was called and he could not say what I had. This led
to me, an eight year old, being kept isolated in a sickroom at a
school I hardly knew with fifty-something year-old a matron I feared -
she was Ethiopean and had been Haile Selassies's nurse before she
came to England and she spoke hardly any English. Apart from her no
one else came in for four days, something which is very strange for
an eight-year old.

I was sent home - something the other boys cheerfully told me only
happened if you were going to die. My mother had been a nurse and
after about two or three weeks the fever subsided. I had hoped,
perhaps due to the expectation of death by the other boys, that my
illness would at least mean I would not have to go back to the
birching hell of the preparatory school, Sandle Manor, near
Fordingbridge, but to my horror I was returned.

After the illness I became an extremely sleepy and fatigued young boy
according to my school reports. Various synonyms for tiredness
appeared in all my school reports until I was about eleven. I was
even beaten for 'not trying' due to this. Anyone who has been beaten
knows what a traumatic experience this is.

I became shy, introvert and poor at lessons. Both my parents had been
scholarship children and they could not understand this throw-back to
a dullard. I remember my time at boarding school as something like
hell on earth. When prison inmates say they only survive by thinking
of their release I know exactly what they mean.

I see from photographs that by age eleven I had developed a sloped
shoulder and the signs of paralysis of the right side of my face and
neck. I was good at athletics and football but hopeless at cricket,
something that always surprised me. I think that I probably had
started to develop poor eyesight in my left eye and poor co-
ordination, things that are essential at cricket.

At thirteen I went to another boarding school, Clifton College. I
kept blinking with my left eye, something my study-mate imitated with
merciless accuracy. I was very tired and took every opportunity to
fall asleep. At chapel in the morning we first waited around,
sometimes watching John Cleese being funny, and then went in. As soon
as the 'let us pray' was intoned I put my head on my arms and was
instantly asleep.

I was seventeen when the sole of one foot became red and extremely
painful. The house matron told me I should wash my socks more often.
It was the end of term, all the others had left and I had to get a
train to Scotland where my father had been posted. So nothing was
done or said about this foot. The inflammation was thereafter always
called athlete's foot and treated as a minor ailment. I have that to
this day. After six years it started to enter the toenails beginning
with the little toe. It was still called athlete's foot by any doctor
I saw. Two years ago I insisted I go to the skin dept at the hospital
here and a professor demonstrated my foot to students - as athlete's
foot. He took some tests which showed no sign of fungal infection. He
re-did the tests. Same again. He ordered a microscopic inspection.
Still no fungus.

Also when I was seventeen I began to get an allergy to the wildcat my
sister had adopted. By now my mother had begun to view my continual
illnesses as a personal insult to her persona as an SRN. But they
continued. I became allergic to cold.

At university the allergy became violent and I took gigantic doses of
anti-histamin which cured the allergy but put me to sleep during
lectures.

At twenty-four I began to get lower back pain, not common in a person
of that age. I also had very bad migraine attacks on the left side,
almost daily.

Although I had managed a degree in Mining the Swedish company I
worked for clearly realized that I was not the tough Mining Engineer
they thought they had hired. I got a job analyzing mining stocks in
the City, but the migraine had now become almost constant and very
painful. I took to the miner's friend, the chiropractor. All miners
have back problems and they all go to chiropractor's, not doctors.
But my health problems were obvious.

I got a job selling mining equipment for a Swedish company, an old
customer. Once again, my health problems let me down. The problem was
no doctor seemed to be able to cure anything, although they all gave
the appearance of knowing what they were up to. I realized that I
could not drink alcohol without getting a violent heachache, a
problem for a salesman.

I got a post at a university and was rather well, there being nothing
else to do in my spare time but exercises. Alas, my professor
demanded some work and my time there was up.

I started a company of my own teaching English which went rather
well. Then I got crippling testicle pain. Four months of this really
serious pain went by until I had a testicle castrated during an
inspection - by mistake. The pain got even worse. The test on the
testicle showed it was healthy. I reported every consultant in sight
to the Swedish medical council - and got medical compensation.

By then I had many of the other symptoms such as tinnitus and hearing
loss. The sole of the foot had gone hard and atrophied and cracked
like a river bed in a drought. I could not walk on the foot. I got
carpel tunnel syndrome. I got backache although I exercised every
day. My teeth kept getting problems. I got arthritis so I could not
even lie in a hot bath. I got an epigastrial hernia. I could not
breath without an expander in my nose - socially handicapping. The
joints in my fingers started to hurt.

I can't sit down as I have pain in a place I couldn't find the name
of for a a long time, the perineum.

I felt like I always wanted to go to the loo. Well, to cut a longer
story short my vagina has not been affected at all as I haven't found
it yet.

Peter

--- In EuroLyme@yahoogroups.com, "annayed" <haniacroft@...> wrote:
>
> Hi Peter,
> Are your symptoms listed in their order of onset?
>
> I also wondered whether (if aside from suffering similar symptoms)
> others (with chronic lyme) have also found that their onset of
> symptoms occurred in a similar order? And if so what?
>
> Eg, recently I've had stinging sensations in my eyes - but carpel
> tunnel/neck problems began about a year ago. My symptoms first began
> to impede me severely about 4 years ago.
>
> Kind regards
>
> Hania
>
>
>
>
> --- In EuroLyme@yahoogroups.com, "newforest41" <newforest41@> wrote:
> >
> > Hi
> > Below is the very subjective list of symptoms and conditions now
> > including those that responded as well.
> >
> > There are 138 conditions listed so there must be a lesson there
> > somewhere.
> >
> > Fatigue leading to severe desire to fall asleep, stiff neck and
face,
> > pain in eyes or more often one eye, pain behind eye, pain at back
of
> > head seemingly passing through to eye, eye squeaky on touch or
even
> > on shutting, photosensitivity, blindness, loss of hearing,
tinnitus,
> > hypersensitivity to sound, pain in nose on breathing, difficulty
in
> > obtaining breath due to collapse of sides of nose, sinus
infection
> > symptoms, joint pain, pain in wrists similar to Carpel-tunnel
> > syndrome,
> >
> > inflammation of the nerve systems of peripheral parts, pain and
> > stiffness in finger joints in spite of use or exercise, swollen
> > knees, bulls-eye bite mark, skin rashes that can be red, red-
blue,
> > blue-black, brown-blue, brown, or black potato-like marks, small
red
> > bite-like marks, often near bruise marks, pain in testicles,
swelling
> > of testicles, pain in the perineum, frequent or painful
urination,
> > constant feeling of need to urinate, pain on organism, tenderness
in
> > vagina and pain on intercourse, pain in abdomen, muscle pain,
back
> > pain, pain in small of the back,
> >
> > pain in the breast, pain in hips and buttocks, arthritic pain,
> > migraine, often one-sided, headache, giddiness, balance problems,
> > heavy-brain feeling often one-sided, blue-red skin under foot,
red-
> > white atrophy of skin under foot, redness under foot extending to
> > clearly marked line along foot about a cm above bottom of foot,
> > drying and cracking of skin under foot, loss of feeling and
numbness
> > in extremities such as fingers, feet and ears, neurological
problems,
> > problems with memory and confusion, brain fog or sudden loss of
> > mental memory and attention, episodes of anger without apparent
> > cause, episodes of apathy and indifference,
> >
> > problems concentrating, problems concentrating on one thing at a
> > time with several activities going on simultaneously, heart
problems,
> > heart block, palpitations, heart inflammation, low-level cough or
> > bronchitis with continual expectorant, teeth grinding, teeth
> > infection, tight-jaw problems with excess firmness in jaw, pain
in
> > jaw muscles and in the mandible joint, one-sided paralysis in
> > shoulder and neck and facial muscles, shoulder-droop, fencing
stance
> > of body, eye twitching, muscle twitch,
> >
> > encephalitis, meningitis, one-sided tension of facial muscles
leading
> > to appearance of lop-sided smile, loss of feeling in facial
muscles,
> > often one-sided, permanent thrusting forward of face, alcohol
> > intolerance leading to extreme drunkenness or desire to sleep
with
> > very moderate intake of alcohol, alcohol intolerance leading to
> > extremely painful and long-lasting eye pain that responds to no
> > treatment, alcohol intolerance leading to giddiness and memory
loss,
> > alcohol intolerance that leads to inexplicable loss of impulse
> > control, allergies of various sorts both violent and extreme in
> > degree and in their resistance to conventional treatments,
> >
> > flu-like symptoms, feeling unwell, tendon problems, Baker cysts,
> > skeletal problems, tingling, pricking or numbness of skin,
balance
> > problems, sleep disturbance, changes in mood or affect, low-level
> > encephalitis. The personal and familial overload of changing and
> > never-ending symptoms coupled with difficulties in obtaining
medical
> > advice or help of use, and even of adversarial medical misconduct
can
> > often lead to a secondary breakdown state which may appear to be
a
> > psychological disorder. Removal of some of these difficulties
usually
> > leads to a reduction or resolution of the so-called psychological
> > illness,
> >
> > `bee sting' or `zapping' sensations in the brain, from one ear to
the
> > other, on face, in spine, stomach, armpits, ovaries, testicles
and
> > pelvis, itching, feelings of small electric shocks in head,
sensation
> > of `ant chewing' over whole body, feeling water running down
forehead
> > on inside, dry cough, burnt tongue sensation, feeling as if uvula
is
> > about to choke, smell phobia, vibration phobia, abnormal slow
heart
> > action, low or high blood pressure, recurrent itching, feeling as
if
> > head or body is trembling or vibrating, spontaneous bruising
mainly
> > on limbs hands and feet,
> >
> > earache, enormous sneezes, sensation of movement of cotton wool
bud
> > and down ear canal, gastric reflux, limb or body jerking,
postural
> > low blood pressure, pain on back between shoulder blades,
distorted
> > vision with appearance of pyrotechnics in periphery of visual
field,
> > weird dreams, facial pain mimicking sinusitis, hypersensitivity
to
> > heat, hypersensitivity to cold, breaking out in sweats, low body
> > temperature, oesophageal hernia, feeling of food lodged at back
of
> > mouth, feeling of something stuck in throat, air hunger,
> >
> > Peter T
> >
>


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Messages in this topic (6)
2c. Re: Lyme conditions result
Posted by: "einealice" einealice@yahoo.de einealice
Sat Mar 22, 2008 1:57 pm (PDT)
Well, to cut a longer
> story short my vagina has not been affected at all as I haven't found
> it yet.
>
> Peter
>
hello peter,
you should become the "lyme house" spokesman.....

i felt like your twin with only this tiny little difference....whati
havent found yet aching...
alice


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Messages in this topic (6)
2d. Re: Lyme conditions result
Posted by: "russel.huxtable" russel.huxtable@wanadoo.fr russellhuxtable
Sat Mar 22, 2008 3:00 pm (PDT)
Hi Peter

Are you sure you have Lyme.

Your history seems very odd in relation to my understanding of this illness?

russell
----- Original Message -----
From: newforest41
To: EuroLyme@yahoogroups.com
Sent: Saturday, March 22, 2008 7:37 PM
Subject: [EuroLyme] Re: Lyme conditions result

Hi Hania
No, the symptoms are not listed in order of onset. I got Lyme with a
very serious meningitis or encephalitís with rash over all my body
when I was eight. I had a temperature of 104 degrees F. This is 40
deg C, a very high temperature and one which made all concerned very
worried. They became even more concerned when the temperature did not
decrease. I was retching all the time and could not eat. I had
diarrhea. I had an awful headache and kept praying that God would let
me die.

This was my first term at preparatory school in the New Forest. It
was the summer term and every day we would play cowboys and indians,
crawling along in the long grass in our shorts. I remember the small
spiders that ran quickly over my arms.

The local doctor was called and he could not say what I had. This led
to me, an eight year old, being kept isolated in a sickroom at a
school I hardly knew with fifty-something year-old a matron I feared -
she was Ethiopean and had been Haile Selassies's nurse before she
came to England and she spoke hardly any English. Apart from her no
one else came in for four days, something which is very strange for
an eight-year old.

I was sent home - something the other boys cheerfully told me only
happened if you were going to die. My mother had been a nurse and
after about two or three weeks the fever subsided. I had hoped,
perhaps due to the expectation of death by the other boys, that my
illness would at least mean I would not have to go back to the
birching hell of the preparatory school, Sandle Manor, near
Fordingbridge, but to my horror I was returned.

After the illness I became an extremely sleepy and fatigued young boy
according to my school reports. Various synonyms for tiredness
appeared in all my school reports until I was about eleven. I was
even beaten for 'not trying' due to this. Anyone who has been beaten
knows what a traumatic experience this is.

I became shy, introvert and poor at lessons. Both my parents had been
scholarship children and they could not understand this throw-back to
a dullard. I remember my time at boarding school as something like
hell on earth. When prison inmates say they only survive by thinking
of their release I know exactly what they mean.

I see from photographs that by age eleven I had developed a sloped
shoulder and the signs of paralysis of the right side of my face and
neck. I was good at athletics and football but hopeless at cricket,
something that always surprised me. I think that I probably had
started to develop poor eyesight in my left eye and poor co-
ordination, things that are essential at cricket.

At thirteen I went to another boarding school, Clifton College. I
kept blinking with my left eye, something my study-mate imitated with
merciless accuracy. I was very tired and took every opportunity to
fall asleep. At chapel in the morning we first waited around,
sometimes watching John Cleese being funny, and then went in. As soon
as the 'let us pray' was intoned I put my head on my arms and was
instantly asleep.

I was seventeen when the sole of one foot became red and extremely
painful. The house matron told me I should wash my socks more often.
It was the end of term, all the others had left and I had to get a
train to Scotland where my father had been posted. So nothing was
done or said about this foot. The inflammation was thereafter always
called athlete's foot and treated as a minor ailment. I have that to
this day. After six years it started to enter the toenails beginning
with the little toe. It was still called athlete's foot by any doctor
I saw. Two years ago I insisted I go to the skin dept at the hospital
here and a professor demonstrated my foot to students - as athlete's
foot. He took some tests which showed no sign of fungal infection. He
re-did the tests. Same again. He ordered a microscopic inspection.
Still no fungus.

Also when I was seventeen I began to get an allergy to the wildcat my
sister had adopted. By now my mother had begun to view my continual
illnesses as a personal insult to her persona as an SRN. But they
continued. I became allergic to cold.

At university the allergy became violent and I took gigantic doses of
anti-histamin which cured the allergy but put me to sleep during
lectures.

At twenty-four I began to get lower back pain, not common in a person
of that age. I also had very bad migraine attacks on the left side,
almost daily.

Although I had managed a degree in Mining the Swedish company I
worked for clearly realized that I was not the tough Mining Engineer
they thought they had hired. I got a job analyzing mining stocks in
the City, but the migraine had now become almost constant and very
painful. I took to the miner's friend, the chiropractor. All miners
have back problems and they all go to chiropractor's, not doctors.
But my health problems were obvious.

I got a job selling mining equipment for a Swedish company, an old
customer. Once again, my health problems let me down. The problem was
no doctor seemed to be able to cure anything, although they all gave
the appearance of knowing what they were up to. I realized that I
could not drink alcohol without getting a violent heachache, a
problem for a salesman.

I got a post at a university and was rather well, there being nothing
else to do in my spare time but exercises. Alas, my professor
demanded some work and my time there was up.

I started a company of my own teaching English which went rather
well. Then I got crippling testicle pain. Four months of this really
serious pain went by until I had a testicle castrated during an
inspection - by mistake. The pain got even worse. The test on the
testicle showed it was healthy. I reported every consultant in sight
to the Swedish medical council - and got medical compensation.

By then I had many of the other symptoms such as tinnitus and hearing
loss. The sole of the foot had gone hard and atrophied and cracked
like a river bed in a drought. I could not walk on the foot. I got
carpel tunnel syndrome. I got backache although I exercised every
day. My teeth kept getting problems. I got arthritis so I could not
even lie in a hot bath. I got an epigastrial hernia. I could not
breath without an expander in my nose - socially handicapping. The
joints in my fingers started to hurt.

I can't sit down as I have pain in a place I couldn't find the name
of for a a long time, the perineum.

I felt like I always wanted to go to the loo. Well, to cut a longer
story short my vagina has not been affected at all as I haven't found
it yet.

Peter

--- In EuroLyme@yahoogroups.com, "annayed" <haniacroft@...> wrote:
>
> Hi Peter,
> Are your symptoms listed in their order of onset?
>
> I also wondered whether (if aside from suffering similar symptoms)
> others (with chronic lyme) have also found that their onset of
> symptoms occurred in a similar order? And if so what?
>
> Eg, recently I've had stinging sensations in my eyes - but carpel
> tunnel/neck problems began about a year ago. My symptoms first began
> to impede me severely about 4 years ago.
>
> Kind regards
>
> Hania
>
>
>
>
> --- In EuroLyme@yahoogroups.com, "newforest41" <newforest41@> wrote:
> >
> > Hi
> > Below is the very subjective list of symptoms and conditions now
> > including those that responded as well.
> >
> > There are 138 conditions listed so there must be a lesson there
> > somewhere.
> >
> > Fatigue leading to severe desire to fall asleep, stiff neck and
face,
> > pain in eyes or more often one eye, pain behind eye, pain at back
of
> > head seemingly passing through to eye, eye squeaky on touch or
even
> > on shutting, photosensitivity, blindness, loss of hearing,
tinnitus,
> > hypersensitivity to sound, pain in nose on breathing, difficulty
in
> > obtaining breath due to collapse of sides of nose, sinus
infection
> > symptoms, joint pain, pain in wrists similar to Carpel-tunnel
> > syndrome,
> >
> > inflammation of the nerve systems of peripheral parts, pain and
> > stiffness in finger joints in spite of use or exercise, swollen
> > knees, bulls-eye bite mark, skin rashes that can be red, red-
blue,
> > blue-black, brown-blue, brown, or black potato-like marks, small
red
> > bite-like marks, often near bruise marks, pain in testicles,
swelling
> > of testicles, pain in the perineum, frequent or painful
urination,
> > constant feeling of need to urinate, pain on organism, tenderness
in
> > vagina and pain on intercourse, pain in abdomen, muscle pain,
back
> > pain, pain in small of the back,
> >
> > pain in the breast, pain in hips and buttocks, arthritic pain,
> > migraine, often one-sided, headache, giddiness, balance problems,
> > heavy-brain feeling often one-sided, blue-red skin under foot,
red-
> > white atrophy of skin under foot, redness under foot extending to
> > clearly marked line along foot about a cm above bottom of foot,
> > drying and cracking of skin under foot, loss of feeling and
numbness
> > in extremities such as fingers, feet and ears, neurological
problems,
> > problems with memory and confusion, brain fog or sudden loss of
> > mental memory and attention, episodes of anger without apparent
> > cause, episodes of apathy and indifference,
> >
> > problems concentrating, problems concentrating on one thing at a
> > time with several activities going on simultaneously, heart
problems,
> > heart block, palpitations, heart inflammation, low-level cough or
> > bronchitis with continual expectorant, teeth grinding, teeth
> > infection, tight-jaw problems with excess firmness in jaw, pain
in
> > jaw muscles and in the mandible joint, one-sided paralysis in
> > shoulder and neck and facial muscles, shoulder-droop, fencing
stance
> > of body, eye twitching, muscle twitch,
> >
> > encephalitis, meningitis, one-sided tension of facial muscles
leading
> > to appearance of lop-sided smile, loss of feeling in facial
muscles,
> > often one-sided, permanent thrusting forward of face, alcohol
> > intolerance leading to extreme drunkenness or desire to sleep
with
> > very moderate intake of alcohol, alcohol intolerance leading to
> > extremely painful and long-lasting eye pain that responds to no
> > treatment, alcohol intolerance leading to giddiness and memory
loss,
> > alcohol intolerance that leads to inexplicable loss of impulse
> > control, allergies of various sorts both violent and extreme in
> > degree and in their resistance to conventional treatments,
> >
> > flu-like symptoms, feeling unwell, tendon problems, Baker cysts,
> > skeletal problems, tingling, pricking or numbness of skin,
balance
> > problems, sleep disturbance, changes in mood or affect, low-level
> > encephalitis. The personal and familial overload of changing and
> > never-ending symptoms coupled with difficulties in obtaining
medical
> > advice or help of use, and even of adversarial medical misconduct
can
> > often lead to a secondary breakdown state which may appear to be
a
> > psychological disorder. Removal of some of these difficulties
usually
> > leads to a reduction or resolution of the so-called psychological
> > illness,
> >
> > `bee sting' or `zapping' sensations in the brain, from one ear to
the
> > other, on face, in spine, stomach, armpits, ovaries, testicles
and
> > pelvis, itching, feelings of small electric shocks in head,
sensation
> > of `ant chewing' over whole body, feeling water running down
forehead
> > on inside, dry cough, burnt tongue sensation, feeling as if uvula
is
> > about to choke, smell phobia, vibration phobia, abnormal slow
heart
> > action, low or high blood pressure, recurrent itching, feeling as
if
> > head or body is trembling or vibrating, spontaneous bruising
mainly
> > on limbs hands and feet,
> >
> > earache, enormous sneezes, sensation of movement of cotton wool
bud
> > and down ear canal, gastric reflux, limb or body jerking,
postural
> > low blood pressure, pain on back between shoulder blades,
distorted
> > vision with appearance of pyrotechnics in periphery of visual
field,
> > weird dreams, facial pain mimicking sinusitis, hypersensitivity
to
> > heat, hypersensitivity to cold, breaking out in sweats, low body
> > temperature, oesophageal hernia, feeling of food lodged at back
of
> > mouth, feeling of something stuck in throat, air hunger,
> >
> > Peter T
> >
>

[Non-text portions of this message have been removed]


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Messages in this topic (6)
2e. Re: Lyme conditions result
Posted by: "newforest41" newforest41@yahoo.co.uk newforest41
Sun Mar 23, 2008 12:57 am (PDT)
Hi Russel

What in my account makes you ask that?

Peter

--- In EuroLyme@yahoogroups.com, "russel.huxtable"
<russel.huxtable@...> wrote:
>
> Hi Peter
>
> Are you sure you have Lyme.
>
> Your history seems very odd in relation to my understanding of this
illness?
>
> russell
> ----- Original Message -----
> From: newforest41
> To: EuroLyme@yahoogroups.com
> Sent: Saturday, March 22, 2008 7:37 PM
> Subject: [EuroLyme] Re: Lyme conditions result
>
>
> Hi Hania
> No, the symptoms are not listed in order of onset. I got Lyme
with a
> very serious meningitis or encephalitís with rash over all my
body
> when I was eight. I had a temperature of 104 degrees F. This is
40
> deg C, a very high temperature and one which made all concerned
very
> worried. They became even more concerned when the temperature did
not
> decrease. I was retching all the time and could not eat. I had
> diarrhea. I had an awful headache and kept praying that God would
let
> me die.
>
> This was my first term at preparatory school in the New Forest.
It
> was the summer term and every day we would play cowboys and
indians,
> crawling along in the long grass in our shorts. I remember the
small
> spiders that ran quickly over my arms.
>
> The local doctor was called and he could not say what I had. This
led
> to me, an eight year old, being kept isolated in a sickroom at a
> school I hardly knew with fifty-something year-old a matron I
feared -
> she was Ethiopean and had been Haile Selassies's nurse before she
> came to England and she spoke hardly any English. Apart from her
no
> one else came in for four days, something which is very strange
for
> an eight-year old.
>
> I was sent home - something the other boys cheerfully told me
only
> happened if you were going to die. My mother had been a nurse and
> after about two or three weeks the fever subsided. I had hoped,
> perhaps due to the expectation of death by the other boys, that
my
> illness would at least mean I would not have to go back to the
> birching hell of the preparatory school, Sandle Manor, near
> Fordingbridge, but to my horror I was returned.
>
> After the illness I became an extremely sleepy and fatigued young
boy
> according to my school reports. Various synonyms for tiredness
> appeared in all my school reports until I was about eleven. I was
> even beaten for 'not trying' due to this. Anyone who has been
beaten
> knows what a traumatic experience this is.
>
> I became shy, introvert and poor at lessons. Both my parents had
been
> scholarship children and they could not understand this throw-
back to
> a dullard. I remember my time at boarding school as something
like
> hell on earth. When prison inmates say they only survive by
thinking
> of their release I know exactly what they mean.
>
> I see from photographs that by age eleven I had developed a
sloped
> shoulder and the signs of paralysis of the right side of my face
and
> neck. I was good at athletics and football but hopeless at
cricket,
> something that always surprised me. I think that I probably had
> started to develop poor eyesight in my left eye and poor co-
> ordination, things that are essential at cricket.
>
> At thirteen I went to another boarding school, Clifton College. I
> kept blinking with my left eye, something my study-mate imitated
with
> merciless accuracy. I was very tired and took every opportunity
to
> fall asleep. At chapel in the morning we first waited around,
> sometimes watching John Cleese being funny, and then went in. As
soon
> as the 'let us pray' was intoned I put my head on my arms and was
> instantly asleep.
>
> I was seventeen when the sole of one foot became red and
extremely
> painful. The house matron told me I should wash my socks more
often.
> It was the end of term, all the others had left and I had to get
a
> train to Scotland where my father had been posted. So nothing was
> done or said about this foot. The inflammation was thereafter
always
> called athlete's foot and treated as a minor ailment. I have that
to
> this day. After six years it started to enter the toenails
beginning
> with the little toe. It was still called athlete's foot by any
doctor
> I saw. Two years ago I insisted I go to the skin dept at the
hospital
> here and a professor demonstrated my foot to students - as
athlete's
> foot. He took some tests which showed no sign of fungal
infection. He
> re-did the tests. Same again. He ordered a microscopic
inspection.
> Still no fungus.
>
> Also when I was seventeen I began to get an allergy to the
wildcat my
> sister had adopted. By now my mother had begun to view my
continual
> illnesses as a personal insult to her persona as an SRN. But they
> continued. I became allergic to cold.
>
> At university the allergy became violent and I took gigantic
doses of
> anti-histamin which cured the allergy but put me to sleep during
> lectures.
>
> At twenty-four I began to get lower back pain, not common in a
person
> of that age. I also had very bad migraine attacks on the left
side,
> almost daily.
>
> Although I had managed a degree in Mining the Swedish company I
> worked for clearly realized that I was not the tough Mining
Engineer
> they thought they had hired. I got a job analyzing mining stocks
in
> the City, but the migraine had now become almost constant and
very
> painful. I took to the miner's friend, the chiropractor. All
miners
> have back problems and they all go to chiropractor's, not
doctors.
> But my health problems were obvious.
>
> I got a job selling mining equipment for a Swedish company, an
old
> customer. Once again, my health problems let me down. The problem
was
> no doctor seemed to be able to cure anything, although they all
gave
> the appearance of knowing what they were up to. I realized that I
> could not drink alcohol without getting a violent heachache, a
> problem for a salesman.
>
> I got a post at a university and was rather well, there being
nothing
> else to do in my spare time but exercises. Alas, my professor
> demanded some work and my time there was up.
>
> I started a company of my own teaching English which went rather
> well. Then I got crippling testicle pain. Four months of this
really
> serious pain went by until I had a testicle castrated during an
> inspection - by mistake. The pain got even worse. The test on the
> testicle showed it was healthy. I reported every consultant in
sight
> to the Swedish medical council - and got medical compensation.
>
> By then I had many of the other symptoms such as tinnitus and
hearing
> loss. The sole of the foot had gone hard and atrophied and
cracked
> like a river bed in a drought. I could not walk on the foot. I
got
> carpel tunnel syndrome. I got backache although I exercised every
> day. My teeth kept getting problems. I got arthritis so I could
not
> even lie in a hot bath. I got an epigastrial hernia. I could not
> breath without an expander in my nose - socially handicapping.
The
> joints in my fingers started to hurt.
>
> I can't sit down as I have pain in a place I couldn't find the
name
> of for a a long time, the perineum.
>
> I felt like I always wanted to go to the loo. Well, to cut a
longer
> story short my vagina has not been affected at all as I haven't
found
> it yet.
>
> Peter
>
> --- In EuroLyme@yahoogroups.com, "annayed" <haniacroft@> wrote:
> >
> > Hi Peter,
> > Are your symptoms listed in their order of onset?
> >
> > I also wondered whether (if aside from suffering similar
symptoms)
> > others (with chronic lyme) have also found that their onset of
> > symptoms occurred in a similar order? And if so what?
> >
> > Eg, recently I've had stinging sensations in my eyes - but
carpel
> > tunnel/neck problems began about a year ago. My symptoms first
began
> > to impede me severely about 4 years ago.
> >
> > Kind regards
> >
> > Hania
> >
> >
> >
> >
> > --- In EuroLyme@yahoogroups.com, "newforest41" <newforest41@>
wrote:
> > >
> > > Hi
> > > Below is the very subjective list of symptoms and conditions
now
> > > including those that responded as well.
> > >
> > > There are 138 conditions listed so there must be a lesson
there
> > > somewhere.
> > >
> > > Fatigue leading to severe desire to fall asleep, stiff neck
and
> face,
> > > pain in eyes or more often one eye, pain behind eye, pain at
back
> of
> > > head seemingly passing through to eye, eye squeaky on touch
or
> even
> > > on shutting, photosensitivity, blindness, loss of hearing,
> tinnitus,
> > > hypersensitivity to sound, pain in nose on breathing,
difficulty
> in
> > > obtaining breath due to collapse of sides of nose, sinus
> infection
> > > symptoms, joint pain, pain in wrists similar to Carpel-tunnel
> > > syndrome,
> > >
> > > inflammation of the nerve systems of peripheral parts, pain
and
> > > stiffness in finger joints in spite of use or exercise,
swollen
> > > knees, bulls-eye bite mark, skin rashes that can be red, red-
> blue,
> > > blue-black, brown-blue, brown, or black potato-like marks,
small
> red
> > > bite-like marks, often near bruise marks, pain in testicles,
> swelling
> > > of testicles, pain in the perineum, frequent or painful
> urination,
> > > constant feeling of need to urinate, pain on organism,
tenderness
> in
> > > vagina and pain on intercourse, pain in abdomen, muscle pain,
> back
> > > pain, pain in small of the back,
> > >
> > > pain in the breast, pain in hips and buttocks, arthritic
pain,
> > > migraine, often one-sided, headache, giddiness, balance
problems,
> > > heavy-brain feeling often one-sided, blue-red skin under
foot,
> red-
> > > white atrophy of skin under foot, redness under foot
extending to
> > > clearly marked line along foot about a cm above bottom of
foot,
> > > drying and cracking of skin under foot, loss of feeling and
> numbness
> > > in extremities such as fingers, feet and ears, neurological
> problems,
> > > problems with memory and confusion, brain fog or sudden loss
of
> > > mental memory and attention, episodes of anger without
apparent
> > > cause, episodes of apathy and indifference,
> > >
> > > problems concentrating, problems concentrating on one thing
at a
> > > time with several activities going on simultaneously, heart
> problems,
> > > heart block, palpitations, heart inflammation, low-level
cough or
> > > bronchitis with continual expectorant, teeth grinding, teeth
> > > infection, tight-jaw problems with excess firmness in jaw,
pain
> in
> > > jaw muscles and in the mandible joint, one-sided paralysis in
> > > shoulder and neck and facial muscles, shoulder-droop, fencing
> stance
> > > of body, eye twitching, muscle twitch,
> > >
> > > encephalitis, meningitis, one-sided tension of facial muscles
> leading
> > > to appearance of lop-sided smile, loss of feeling in facial
> muscles,
> > > often one-sided, permanent thrusting forward of face, alcohol
> > > intolerance leading to extreme drunkenness or desire to sleep
> with
> > > very moderate intake of alcohol, alcohol intolerance leading
to
> > > extremely painful and long-lasting eye pain that responds to
no
> > > treatment, alcohol intolerance leading to giddiness and
memory
> loss,
> > > alcohol intolerance that leads to inexplicable loss of
impulse
> > > control, allergies of various sorts both violent and extreme
in
> > > degree and in their resistance to conventional treatments,
> > >
> > > flu-like symptoms, feeling unwell, tendon problems, Baker
cysts,
> > > skeletal problems, tingling, pricking or numbness of skin,
> balance
> > > problems, sleep disturbance, changes in mood or affect, low-
level
> > > encephalitis. The personal and familial overload of changing
and
> > > never-ending symptoms coupled with difficulties in obtaining
> medical
> > > advice or help of use, and even of adversarial medical
misconduct
> can
> > > often lead to a secondary breakdown state which may appear to
be
> a
> > > psychological disorder. Removal of some of these difficulties
> usually
> > > leads to a reduction or resolution of the so-called
psychological
> > > illness,
> > >
> > > `bee sting' or `zapping' sensations in the brain, from one
ear to
> the
> > > other, on face, in spine, stomach, armpits, ovaries,
testicles
> and
> > > pelvis, itching, feelings of small electric shocks in head,
> sensation
> > > of `ant chewing' over whole body, feeling water running down
> forehead
> > > on inside, dry cough, burnt tongue sensation, feeling as if
uvula
> is
> > > about to choke, smell phobia, vibration phobia, abnormal slow
> heart
> > > action, low or high blood pressure, recurrent itching,
feeling as
> if
> > > head or body is trembling or vibrating, spontaneous bruising
> mainly
> > > on limbs hands and feet,
> > >
> > > earache, enormous sneezes, sensation of movement of cotton
wool
> bud
> > > and down ear canal, gastric reflux, limb or body jerking,
> postural
> > > low blood pressure, pain on back between shoulder blades,
> distorted
> > > vision with appearance of pyrotechnics in periphery of visual
> field,
> > > weird dreams, facial pain mimicking sinusitis,
hypersensitivity
> to
> > > heat, hypersensitivity to cold, breaking out in sweats, low
body
> > > temperature, oesophageal hernia, feeling of food lodged at
back
> of
> > > mouth, feeling of something stuck in throat, air hunger,
> > >
> > > Peter T
> > >
> >
>
>
>
>
>
> [Non-text portions of this message have been removed]
>


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Messages in this topic (6)
3a. Re: bedbound,no doctor,no diagnosis
Posted by: "Jo Gurney" jo.gurney@dsl.pipex.com jo4ros2
Sat Mar 22, 2008 5:18 am (PDT)
So sorry Alice. Good luck with your quest. Are only doctors allowed
to take blood?
Jo
On 21 Mar 2008, at 19:51, einealice wrote:

> --- In EuroLyme@yahoogroups.com, Jo Gurney <jo.gurney@...> wrote:
> >
> > Could a nurse take the blood if a doctor would agree to receive the
> > results and pass them on. I think most tests insist on that.
> > Jo
> > On 17 Mar 2008, at 19:02, einealice wrote:
> >
> > > who knows help,diagnosis,treatment,who has an idea how to get
> help for
> > > a person,who is bedbound,cannot travel to a doctors
> office,cannot talk
> >hello jo!
> its a good idea,but no nurse would come to the flat-for nureses taking
> blood is forbitten in our country....
> thank you very much!!!
> alice
>
>
>

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Messages in this topic (4)
4. Re Jumping genes
Posted by: "Denise Longman" denlongman@aol.com deniseannlongman
Sat Mar 22, 2008 7:08 am (PDT)
Hi Overman,

This recent review by Czech scientists really goes into the




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