August 2007
Chronic fatigue syndrome/myalgic encephalomyelitis (or encephalopathy)
Chronic fatigue syndrome/myalgic encephalomyelitis (or encephalopathy): diagnosis and management of CFS/ME in adults and children
Summary
This guideline is about the care of people with chronic fatigue syndrome, which is also called myalgic encephalomyelitis (or encephalopathy), in the NHS in England and Wales. Throughout this booklet we refer to the condition as CFS/ME for short. The booklet explains guidance (advice) from NICE (the National Institute for Health and Clinical Excellence). It is written for people with CFS/ME, and parents or carers of people with the condition. It may also be useful for other family members or for anyone with an interest in CFS/ME.
The guideline aims to help you understand the care and treatment options that should be available in the NHS.
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NICE clinical guideline 53
Chronic fatigue syndrome/myalgic encephalomyelitis (or encephalopathy): diagnosis and management of CFS/ME in adults and children
Ordering information
You can download the following documents from www.nice.org.uk/CG053
The NICE guideline (this document) – all the recommendations.
A quick reference guide – a summary of the recommendations for healthcare professionals.
‘Understanding NICE guidance’ – information for patients and carers.
The full guideline – all the recommendations, details of how they were developed, and reviews of the evidence they were based on.
For printed copies of the quick reference guide or ‘Understanding NICE guidance’, phone the NHS Response Line on 0870 1555 455 and quote:
N1302 (quick reference guide)
N1303 (‘Understanding NICE guidance’).
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NICE clinical guidelines are recommendations about the treatment and care of people with specific diseases and conditions in the NHS in England and Wales
This guidance represents the view of the Institute, which was arrived at after careful consideration of the evidence available. Healthcare professionals are expected to take it fully into account when exercising their clinical judgement. The guidance does not, however, override the individual responsibility of healthcare professionals to make decisions appropriate to the circumstances of the individual patient, in consultation with the patient and/or guardian or carer and informed by the summary of product characteristics of any drugs they are considering.
National Institute for Health and Clinical Excellence
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71 High Holborn
London
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www.nice.org.uk
© National Institute for Health and Clinical Excellence, August 2007. All rights reserved. This material may be freely reproduced for educational and not-for-profit purposes. No reproduction by or for commercial organisations, or for commercial purposes, is allowed without the express written permission of the Institute.
Contents
Introduction......................................................................................................4
Patient-centred care.........................................................................................6
Key priorities for implementation......................................................................8
1 Guidance................................................................................................11
1.1 General principles of care................................................................11
1.2 Presentation....................................................................................14
1.3 Diagnosis.........................................................................................17
1.4 General management strategies after diagnosis.............................18
1.5 Referral to specialist CFS/ME care..................................................25
1.6 Specialist CFS/ME care...................................................................25
1.7 Management of setbacks/relapses..................................................33
1.8 Review and ongoing management..................................................35
1.9 Key principles of care for people with severe CFS/ME....................35
2 Notes on the scope of the guidance.......................................................38
3 Implementation.......................................................................................38
4 Research recommendations...................................................................39
5 Other versions of this guideline...............................................................41
6 Related NICE guidance..........................................................................42
7 Updating the guideline............................................................................43
Appendix A: The Guideline Development Group...........................................44
Appendix B: The Guideline Review Panel.....................................................47
Appendix C: The algorithms...........................................................................48
Appendix D: Definitions used in this guideline..........................................................49
Tutto il documento lo trovare in allegato qui:
Formato Word:
CG53NICEGuideline.doc 703K
40 Numero di downloadsFormato PFD (Acrobat)
Linee_Guida_UK_2007.pdf 336,81K
64 Numero di downloads
